Vulvovaginal Pain Disorders

Tight Lipped

Tight Lipped is a grassroots movement by and for people with chronic vulvovaginal and pelvic pain.

The International Society for the Study of Vulvovaginal Disease (ISSVD)

The International Society for the Study of Vulvovaginal Disease (ISSVD) is committed to promoting vulvar education to medical providers globally in order to effectively create change worldwide.

The V Book: A Doctor’s Complete Guide to Vulvovaginal Health (Book)

Elizabeth G. Stewart and Paula Spencer

Tight Lipped Podcast

Tight Lipped is a storytelling podcast that makes public what is often thought of as “private pain.” We ask big questions about female chronic pain. We explore how gender, race, sexual orientation and class impact women and non-binary folks' experiences of healthcare and of their own bodies. Our show focuses on conditions that are extremely common (like vestibulodynia, vaginismus and endometriosis), yet carry with them a social stigma and often impact mental health, identity and intimate relationships.

Zine by Tight Lipped

Opening Up, Tight Lipped's digital zine, shares art, poetry, and stories from over fifty contributors to break the stigma around vulvovaginal and pelvic pain, exploring intimacy, medical gaslighting, and healing.

Vulva Map

A comprehensive, interactive tool designed to help providers and patients better understand vulvar anatomy. This resource supports education, clinical discussions, and patient empowerment by offering clear, accurate visualizations of the vulva.

Exploring the Impact of Vulvovaginal Pain Disorders on Sexual Health and Well-Being

This study examines the effects of vulvovaginal pain disorders on sexual health, quality of life, and psychological well-being. It explores potential causes, diagnostic challenges, and treatment options to improve patient outcomes.

Tight-Lipped: Living with Vulvodynia

In this Oprah Daily article, Noa Fleischacker shares her journey with vulvodynia—highlighting the stigma, misdiagnosis, and silence surrounding vulvovaginal pain. Her story underscores the urgent need for awareness, empathy, and better care.

Need Help?

As a service to women everywhere, the Medical Board of Directors is available to address non-urgent medical concerns you may have related to sexual health. While not a replacement for medical care, this service aims to point women in the right direction. We strive to answer all questions within a week. To submit a question, please click here to contact us.

Please note that this service is not meant to provide primary medical advice concerning specific medical care or treatment of any condition. Please consult your healthcare provider regarding your particular medical needs. Other professionals may be consulted from time to time in order to answer certain questions.